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15034 |
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Date: December 16, 2024 at 12:02:17
From: Sue/Seattle, [DNS_Address]
Subject: Lupus |
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I think my daugher may have it. Does any of you folks
have it or know someone that does?
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Responses:
[15045] [15043] [15037] [15042] [15036] [15035] [15040] |
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15045 |
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Date: January 06, 2025 at 09:11:33
From: Awen, [DNS_Address]
Subject: Re: Lupus |
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Not sure if it's relevant here or not since you haven't
mentioned your daughter's specific symptoms (Not
asking, it's none of my business, it just means I don't
know if my post is relevant) but when I first started
early menopause, the doctors didn't think it was that
because of my age.
Given some of my symptoms: butterfly rash, nerve pains,
heart issues, Lupus was mentioned as a possibility.
If your daughter is approaching menopause (which can
happen as early as your 30s for some, though it's rare)
might look into that as a possibility too.
Regardless of what's going on, she has my sympathy.
Once I got past the earliest chaos menopause has been
the best thing that ever happened to me, but there was
at least a year (and looking back, I suspect even
further back than any of us realized) that everything
was constant chaos, mind, body, everything.
PMDD was horrible, toward the end it got worse, then
suddenly much better. I absolutely still have bad days,
but nothing like before.
That said, I am still getting nerve flare-ups and even
without the hot-flashes sometimes get the butterfly
rash on my face. Heart palps still on occasion too
though not as bad as before. Joint issues seem
primarily food related, but not entirely, cold numb
hands are tied in with the migraine cycle, but not as
much as before.
Bodies are mysteries. Good luck.
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Responses:
None |
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15043 |
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Date: December 27, 2024 at 17:03:31
From: Carlina, [DNS_Address]
Subject: Re: Lupus |
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I know at least 4 people that have it/ NE Ohio.
Immunologist stated that vitamin D3 supplements may help,
at least 3000 IUs per day.
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Responses:
None |
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15037 |
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Date: December 16, 2024 at 14:01:09
From: Jeff/Lake Almanor,CA, [DNS_Address]
Subject: Re: Lupus |
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I know or known a few people that have it. And it's not good.
I'm sorry Sue. Please don't sit on this, get on it ASAP.
And keep her out of the sun, ware hats, and cover up all the time.
Even is cloud covered Seattle.
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Responses:
[15042] |
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15042 |
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Date: December 23, 2024 at 19:50:04
From: Kat, [DNS_Address]
Subject: Re: Lupus |
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Think there’s a new meds in the works to help people with Lupus. At least
put them in remission. Good reports. I agree Jeff she needs to get ahead
of this ASAP!
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Responses:
None |
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15036 |
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Date: December 16, 2024 at 13:24:22
From: pamela, [DNS_Address]
Subject: Re: Lupus |
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One of my nieces has it- but so far I don't think she's
found a help.
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Responses:
None |
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15035 |
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Date: December 16, 2024 at 12:06:34
From: ryan, [DNS_Address]
Subject: Re: Lupus |
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this doctor cured hers with diet...basically a diet heavy on cruciferous veggies...
Brooke Goldner
Goodbye Lupus, Hello Delicious
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Responses:
[15040] |
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15040 |
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Date: December 20, 2024 at 12:40:35
From: Sue/Seattle, [DNS_Address]
Subject: Re: Lupus |
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Responses:
None |
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