14733
From: shadow, [DNS_Address]
Subject: Hyperparathyroidism/Hypercalcemia
|
While this is primarily about a health condition I want to bring to everyone's attention, I wanted to share my experience of it, as well, so...Personal? Health? Totally fine if you want to change where this shows up, Mr. Bopp... And, fair warning, this is long. This is an endocrine disorder that has had me by my shortest hairs for far longer than I'd had any idea. The more I learn about it, the more apparent it becomes that while it's quite common, far fewer endocrinologists, let alone GPs, seem to be dialed into it enough within their everyday differential-diagnosis practices to take on the complexities of nailing it down. And while that's infuriating, especially for those going through it, the difficulties presented by the complexities are very real. We just need more endos willing to keep apace with current research on this disorder, willing to do the sometimes-exhaustive work of diagnosing it, and researchers devoted to deeper dives into the whole phenomenon for greater understanding of this very, very weird and disabling thing. Mr. Bopp has kindly agreed to post a graphic I've come upon within an excellent online support group, when he sees my post here, with a symptom list as well as other bits of info that give a good overview of it. Why it's as complex as it is will be apparent after reading it; almost every symptom is often easily attributable to other causes, or seen as natural aging only...and often lab numbers can appear relatively/borderline normal though this disorder is actually present. ~!!!~ I was first diagnosed in 2015, at which point they said I'd probably had it for awhile. They pushed surgery because, as I know now...it really (really) IS the only treatment. But as is common (which I also didn't know then), every single test/scan they do for this can easily miss the hyperparathyroid tumor (adenoma) that's creating the condition...and there can be more than one...so all they can do is go in surgically and find it/them. This was the case with me in '15. Nothing found an adenoma, but with my numbers, there had to be at least one, they said, in pitching surgery. They also explained the dangers of the excess calcium in my blood, though my numbers weren't into big danger levels yet. But as I've mentioned elsewhere...I have severe chronic back/neck issues, and my neck vertebrae's deformities/injuries are such that being put in the position necessary for this surgery, kind of flexed, is just about the worst position it can be in. Also, laying flat on my back isn't something my spine tolerates for more than a couple minutes. And the surgery is long...because they test your hyperparathyroid hormone and blood calcium levels before surgery, and then after the adenoma's out, they retest them...which takes awhile...and if the HPT hormone and calcium levels plummet, they know they've gotten the only culprit. If they don't...they go looking for another or others. So it can take a few hours or many. I just said no, then. Keeping my head functional and properly balanced on its pole with as little neck pain as possible was/is a daily challenge, same with my back...I was still in some iffy later phases of healing from stage 3C/4A endometrial cancer & I knew my life force energy was just a hair above circling the drain...and I just couldn't surrender to it. All the GPs I've had since have agreed to monitor those levels every six months, let me know when I'm pushing it too far, if that happens... I'd also had a couple GPs tell me that these levels can elevate for a few years and then dissipate... So that was my holding pattern for about ten years. It all blew sky high this past August, with infected kidney stones making it clear the surgery couldn't be avoided nor postponed. But first I had two surgeries for the kidney stones, went through the same parathyroid diagnostic array I had in '15 and, whaddya know, they found a whopping adenoma finally. So, terrified though I am, I'll be having that surgery toward the end of this month. And I'm wanting to share not only as much information about this as I can, to as many people I can, but my own experience with it. Both my endo and my surgeon have told me that everything regarding understanding this condition, as well as surgical techniques for it, has come a very long way since '15 (at least for those docs/surgeons who engage it), so I'm not beating myself up for not having done it before...lol...I just know the time has come... Yet in sharing this story I would, yes, encourage anyone who's had this diagnosis to do the surgery sooner rather than later, especially now that those who do work with it are so much more current in their skill and knowledge... When Mr. Bopp adds the graphic box, check the symptom list...it's so easy to see how they're ALL also symptoms of other things, individually and in miasms... Can't quite tell you how fast my jaw dropped when I first looked at this. The only symptoms I don't have going on, on that list, are fibromyalgia, high blood pressure, cracked teeth and, praise all that's holy, I'm not peeing my pants. And no, not all of them are happening 24/7, thank God. I was astounded to realize, thinking over the past 10+ years, that each one I'd had, I'd clearly attributed to other things, easy. All the psychoemotional ones (including the specific anxiety/panic frequency I've now learned is often part of this) were just my lifelong CPTSD worsening with age. Bone pain and muscle spazzing, as well as a mysterious T8 vertebral fracture I had no clue as to the cause of, to the osteoporosis I already knew I had, as well as known deformities and injuries. Have had massive GI issues since cancer surgery. Thought hair loss was due to chronically hypothyroid hormones wobbling again. I won't list/attribute them all, but each symptom, I was positive I'd had tracked to its source. It's been a pretty fascinating backpedal, to realize just how much a percentage of these issues have really been coming from hyperparathyroid/hypercalcemic disorder... Sometimes recovery from surgery is fast, sometimes it's slow, same thing for lab numbers shifting, sometimes...so it won't be until some unknown post-surgical timeframe, when I'll know just how much was from what-all...lol... And of course, I've opened an adjacent room here for all the "Oh, REALLY?! Well that just explains so MUCH about you!!!" hilarity I'm sure will arise from this... ;D ;D ;D ...which I'll endure with a smile should anyone need to voice them... ;) Of course nothing about my core beliefs and values could ever be affected by my biochemistry...lol...but how I convey them, my capacity for best verbal downloading of what I want to say? eeeeeeeep...lol Being in the midst of a sentence and losing the next word I was going to say, omg, I was terrified this was early onset dementia...but severe brainfog is classic, for this... I've also had some fascinating input on hyperparathyroidism from my oldest dear friend, who married into Edgar Cayce's extended family and worked in his archives for over 20 years. She was trained in massage by the man who taught massage to Edgar Cayce, his friend Harold Reilly, when he was in his 90s...and he taught her many subtler-energy connections that exist between the entire endocrine system and our nervous systems, that outpicture in and can be worked with in the spine and skull. He told her that parathyroid issues often source from physical violence in childhood, especially under the ages of 4/5, having something to do with how physical violence sends cortisol levels surging, and how the adrenal gland isn't yet mature enough, at that age, to handle that as it can in an adult. And that the parathyroids are often where that issue/imbalance eventually lands, energetically, growing adenomas/tumors to express/outpicture those wounds... This was part of my history, as this dear friend knows, and she is dead- certain that this surgery will literally change my life...the adenoma being like a big symbolic zit with so much coming to a head in this lifetime, that will be popped and cleared... ;D ;D ;D So. Just really felt the need to put this out there, for anyone who might check it out and wonder if perhaps this is might be happening for them... The experiential stories I have read, of people going through incredibly difficult and complex healing processes with it...the stories of people so deathly ill with symptoms but can't find doctors to take this disorder seriously!!!... I'm going to be doing a lot more of this, sending this info to everyone I know, after surgery, because something this widespread and with such dangerous effects, especially over time...it just needs more energy and attention focused on it, as do the people going through it... So thanks to everyone who took the time to read this, and of all the things I wish everyone, Good Health is right up there at the top right now... ;) |
Responses:
[14750] [14756] [14757] [14758] [14766] [14735] [14734] [14743] [14744] [14739] [14740] [14737] [14738] [14736]
14750
From: EQF, [DNS_Address]
Subject: How to add your own graphics - Mar. 22, 2024
|
Posted by EQF on March 22, 2024 Hi Shadow and all, You can add your own graphics to a post by doing the following: Use a right mouse click on the original picture and then click on the COPY IMAGE LINK option. The link is then in your computer clipboard. PASTE the link to your forum post. You would now have the following from your boppin post that was revised by Mr. Bopp http://earthboppin.net/talkshop/images/HPTdiagram.jpg Now add the following code to the start of that URL WXYP align=centerBWXYAimg src=" You will now have: ABCP align=centerXYZABCimg src="http://earthboppin.net/talkshop/images/HPTdiagram.jpg Now add the following code to the end of that URL "XYZABC/PXYZ You will now have: ABCP align=centerXYZABCimg src="http://earthboppin.net/talkshop/images/HPTdiagram.jpg"XYZABC/PXYZ Now replace each ABC in the code with < and each XYZ in the code with > When you post the note or do the "Preview" the full code that will display as a picture file as shown at the bottom of this posting. Regards to all, EQF
|
14756
From: EQF, [DNS_Address]
Subject: How to add your own graphics - Mar. 24, 2024
|
Posted by EQF on March 24, 2024 That moderately complicated method for adding graphics was posted because it can be used with the "Preview Message" feature of this forum. You can still see the text. If you try any other method you will see the picture if you are successful. Otherwise you will just see a strange looking symbol or nothing at all if you got the code wrong. I myself have my computer programs generate picture code. I also have an operational picture line of code stored in a text file where the code can actually be seen. I just substitute a new URL in place of the one in the text file code. That method would probably be the easiest for most people to use. Regards to all, EQF |
14757
From: EQF, [DNS_Address]
Subject: Re: How to add your own graphics - Mar. 24, 2024
|
Posted by EQF on March 24, 2024 The correct code to add to the start of the URL is: ABCP align=centerXYZABCimg src=" I would be surprised to hear that anyone actually used this method to generate picture code. There are much easier ways to do this. But this method has certain advantages, one being that it will actually work. Regards to all, EQF |
14758
From: shadow, [DNS_Address]
Subject: Re: How to add your own graphics - Mar. 24, 2024
| Thanks so much for all that, EQF! I appreciate it! |
Responses:
[14766]
14766
From: EQF, [DNS_Address]
Subject: Picture Height And Width - Mar. 30, 2024
|
Posted by EQF on March 30, 2024 Hi Shadow, You are welcome. This is Mr. Bopp's Web page discussing this. http://earthboppin.net/talkshop/htmlsyntax.html For people who want to control the size of their picture files they can add the following HEIGHT and/or WIDTH code to their URL. Two copies of the code can be used. The one below lets you see what the code looks like before posting the note. The second one where the substitutions have been are made will enable you to see what the picture actually looks like using the Preview Message feature to check how it looks before posting. Usually just adjusting the Width is adequate. 1000 appears to work fine. With this code, height - 100 and width - 100 generates a very small image. ABCP align=centerXYZABCimg src="http://earthboppin.net/talkshop/images/HPTdiagram.jpg height = 100 width = 100"XYZABC/PXYZ The above code is before substituting < for ABC and > for XYZ
Regards to all, EQF |
Responses:
None
14735
From: mr bopp, [DNS_Address]
Subject: Re: Hyperparathyroidism/Hypercalcemia
|
shadows post with graphic included... While this is primarily about a health condition I want to bring to everyone's attention, I wanted to share my experience of it, as well, so...Personal? Health? Totally fine if you want to change where this shows up, Mr. Bopp... And, fair warning, this is long. This is an endocrine disorder that has had me by my shortest hairs for far longer than I'd had any idea. The more I learn about it, the more apparent it becomes that while it's quite common, far fewer endocrinologists, let alone GPs, seem to be dialed into it enough within their everyday differential-diagnosis practices to take on the complexities of nailing it down. And while that's infuriating, especially for those going through it, the difficulties presented by the complexities are very real. We just need more endos willing to keep apace with current research on this disorder, willing to do the sometimes-exhaustive work of diagnosing it, and researchers devoted to deeper dives into the whole phenomenon for greater understanding of this very, very weird and disabling thing. Mr. Bopp has kindly agreed to post a graphic I've come upon within an excellent online support group, when he sees my post here, with a symptom list as well as other bits of info that give a good overview of it. Why it's as complex as it is will be apparent after reading it; almost every symptom is often easily attributable to other causes, or seen as natural aging only...and often lab numbers can appear relatively/borderline normal though this disorder is actually present. ~!!!~ I was first diagnosed in 2015, at which point they said I'd probably had it for awhile. They pushed surgery because, as I know now...it really (really) IS the only treatment. But as is common (which I also didn't know then), every single test/scan they do for this can easily miss the hyperparathyroid tumor (adenoma) that's creating the condition...and there can be more than one...so all they can do is go in surgically and find it/them. This was the case with me in '15. Nothing found an adenoma, but with my numbers, there had to be at least one, they said, in pitching surgery. They also explained the dangers of the excess calcium in my blood, though my numbers weren't into big danger levels yet. But as I've mentioned elsewhere...I have severe chronic back/neck issues, and my neck vertebrae's deformities/injuries are such that being put in the position necessary for this surgery, kind of flexed, is just about the worst position it can be in. Also, laying flat on my back isn't something my spine tolerates for more than a couple minutes. And the surgery is long...because they test your hyperparathyroid hormone and blood calcium levels before surgery, and then after the adenoma's out, they retest them...which takes awhile...and if the HPT hormone and calcium levels plummet, they know they've gotten the only culprit. If they don't...they go looking for another or others. So it can take a few hours or many. I just said no, then. Keeping my head functional and properly balanced on its pole with as little neck pain as possible was/is a daily challenge, same with my back...I was still in some iffy later phases of healing from stage 3C/4A endometrial cancer & I knew my life force energy was just a hair above circling the drain...and I just couldn't surrender to it. All the GPs I've had since have agreed to monitor those levels every six months, let me know when I'm pushing it too far, if that happens... I'd also had a couple GPs tell me that these levels can elevate for a few years and then dissipate... So that was my holding pattern for about ten years. It all blew sky high this past August, with infected kidney stones making it clear the surgery couldn't be avoided nor postponed. But first I had two surgeries for the kidney stones, went through the same parathyroid diagnostic array I had in '15 and, whaddya know, they found a whopping adenoma finally. So, terrified though I am, I'll be having that surgery toward the end of this month. And I'm wanting to share not only as much information about this as I can, to as many people I can, but my own experience with it. Both my endo and my surgeon have told me that everything regarding understanding this condition, as well as surgical techniques for it, has come a very long way since '15 (at least for those docs/surgeons who engage it), so I'm not beating myself up for not having done it before...lol...I just know the time has come... Yet in sharing this story I would, yes, encourage anyone who's had this diagnosis to do the surgery sooner rather than later, especially now that those who do work with it are so much more current in their skill and knowledge... When Mr. Bopp adds the graphic box, check the symptom list...it's so easy to see how they're ALL also symptoms of other things, individually and in miasms... Can't quite tell you how fast my jaw dropped when I first looked at this. The only symptoms I don't have going on, on that list, are fibromyalgia, high blood pressure, cracked teeth and, praise all that's holy, I'm not peeing my pants. And no, not all of them are happening 24/7, thank God. I was astounded to realize, thinking over the past 10+ years, that each one I'd had, I'd clearly attributed to other things, easy. All the psychoemotional ones (including the specific anxiety/panic frequency I've now learned is often part of this) were just my lifelong CPTSD worsening with age. Bone pain and muscle spazzing, as well as a mysterious T8 vertebral fracture I had no clue as to the cause of, to the osteoporosis I already knew I had, as well as known deformities and injuries. Have had massive GI issues since cancer surgery. Thought hair loss was due to chronically hypothyroid hormones wobbling again. I won't list/attribute them all, but each symptom, I was positive I'd had tracked to its source. It's been a pretty fascinating backpedal, to realize just how much a percentage of these issues have really been coming from hyperparathyroid/hypercalcemic disorder... Sometimes recovery from surgery is fast, sometimes it's slow, same thing for lab numbers shifting, sometimes...so it won't be until some unknown post-surgical timeframe, when I'll know just how much was from what-all...lol... And of course, I've opened an adjacent room here for all the "Oh, REALLY?! Well that just explains so MUCH about you!!!" hilarity I'm sure will arise from this... ;D ;D ;D ...which I'll endure with a smile should anyone need to voice them... ;) Of course nothing about my core beliefs and values could ever be affected by my biochemistry...lol...but how I convey them, my capacity for best verbal downloading of what I want to say? eeeeeeeep...lol Being in the midst of a sentence and losing the next word I was going to say, omg, I was terrified this was early onset dementia...but severe brainfog is classic, for this... I've also had some fascinating input on hyperparathyroidism from my oldest dear friend, who married into Edgar Cayce's extended family and worked in his archives for over 20 years. She was trained in massage by the man who taught massage to Edgar Cayce, his friend Harold Reilly, when he was in his 90s...and he taught her many subtler-energy connections that exist between the entire endocrine system and our nervous systems, that outpicture in and can be worked with in the spine and skull. He told her that parathyroid issues often source from physical violence in childhood, especially under the ages of 4/5, having something to do with how physical violence sends cortisol levels surging, and how the adrenal gland isn't yet mature enough, at that age, to handle that as it can in an adult. And that the parathyroids are often where that issue/imbalance eventually lands, energetically, growing adenomas/tumors to express/outpicture those wounds... This was part of my history, as this dear friend knows, and she is dead- certain that this surgery will literally change my life...the adenoma being like a big symbolic zit with so much coming to a head in this lifetime, that will be popped and cleared... ;D ;D ;D So. Just really felt the need to put this out there, for anyone who might check it out and wonder if perhaps this is might be happening for them... The experiential stories I have read, of people going through incredibly difficult and complex healing processes with it...the stories of people so deathly ill with symptoms but can't find doctors to take this disorder seriously!!!... I'm going to be doing a lot more of this, sending this info to everyone I know, after surgery, because something this widespread and with such dangerous effects, especially over time...it just needs more energy and attention focused on it, as do the people going through it... So thanks to everyone who took the time to read this, and of all the things I wish everyone, Good Health is right up there at the top right now... ;) |
Responses:
None
14734
From: shadow, [DNS_Address]
Subject: Here's the graphic box that goes with above post...
|
Mr. Bopp sent me the URL to include with my post, didn't know I'd already posted it...so here's that... ;) |
Responses:
[14743] [14744] [14739] [14740] [14737] [14738] [14736]
14743
From: ao, [DNS_Address]
Subject: Re: Here's the graphic box that goes with above post...
|
Hey shadow, I hardly ever drop into this forum, so I am a bit behind the curve here. I am sorry to hear of your condition, and am visualizing a positive outcome for the procedure you're facing. And would say, they need an acronym for Hyperparathyroidism/Hypercalcemia. I mean gee, that's more than a mouthful. I had a condition (note I use that word rather than disease because the later has such a negative connotation) that was very rare, and came with a very longwinded name.. antiphospholipid antibody syndrome.. which thankfully is shortened to APS. And for me it was a death sentence, or so the doctors said. And although it is clinically unknown to go into remission, to go away, mine did, and I have been free of it since about the time you were first diagnosed. I have no words, no method, to suggest, other than to remember to keep your vision clear.. and that you are loved. And thanks for sharing the journey. The reason I mention this is to say.. your mind is more powerful than anyone, including ourselves, gives it credit for. Your vision, and your prayers bring a lot more to the party than any doctor will ever acknowledge.. in other words, be strong, and keep your mind unencumbered by the limits of other's visions, unless you choose otherwise. And know others are there for you! |
Responses:
[14744]
14744
From: shadow, [DNS_Address]
Subject: Re: Here's the graphic box that goes with above post...
|
Hey ao, thanks so much for your kind and supportive words & energies, it means a lot... And you bet, this condition needs an acronym yesterday...really tired of typing it all when telling folks about it...lol Wow, well done on masterfully disappearing that APS! Looked it up, that's heinous for sure, so glad you're still here with us! Makes me wonder if this is what my mom had, undiagnosed... She had blood clots flooding up from her legs into her lungs in 1971, almost killed her, and they just called it a "blood clotting disorder"... Prolly lots of causes for abnormal clotting, though, not necessarily the same thing... Because it was in my family history I had to be tested for it before my cancer surgery, but I was fine... So appreciate your lovely reminders on positive powerful mind, I'm on that road for sure... I've had doctors offer me some very blunt, grave speculations on my longevity on several occasions throughout my life, which I've always dismissed pretty easily because I have that orientation. This is the first time I've really surrendered to their context of interpreting my health situation, and this time only because my body very spectacularly back up their assessments...lol... Thanks again, ao... I'm getting through that book you recommended slowly, might have to wait until after surgery to finish & offer feedback... ;) |
Responses:
None
14739
From: Redhart, [DNS_Address]
Subject: Re: Here's the graphic box that goes with above post...
|
Hugs to you shadow in battling this.thanks for enlightening us. |
Responses:
[14740]
14740
From: shadow, [DNS_Address]
Subject: Re: Here's the graphic box that goes with above post...
| Thanks, Red... |
Responses:
None
14737
From: sher, [DNS_Address]
Subject: Re: Here's the graphic box that goes with above post...
| Please keep us posted on your progress. Sending love and big hugs! |
Responses:
[14738]
14738
From: shadow, [DNS_Address]
Subject: Re: Here's the graphic box that goes with above post...
| Thank you sher! Coming right back... |
Responses:
None
14736
From: sher, [DNS_Address]
Subject: Re: Here's the graphic box that goes with above post...
| 🙏🏼🙏🏼🙏🏼❤️❤️❤️ |
Responses:
None